Well, not really hiding. Just dealing with vision issues, steroid infusions, stem cell healing, stress, catching up on stuff at home and basically putting my blog on the back-burner.

But I’m back…

Will get into details once I get a chance to be chilling out tonight with a drink, some quiet and everyone sleeping

My last MRI sucked too!

I had my one month post stem cell followup on Halloween and had an MRI done as well as a whole host of other tests. I got a call a few days later asking me if I felt ok. Oddly, I asked why and was told that there was new activity on my MRI. Apparently I had a few lesions that popped up, including a pretty large one on the left side. Surprisingly, the only symptom that had been bugging me was the spasticity in my legs. So, in order to quiet this lesion, I was put on a 5 day IV steroid infusion… with no taper (that sucked).

I had my last IV steroid infusion on November 7th.
Then on November 9th my left eye decided to get very blurry. It felt like optic neuritis

My stupid eye is bad again and in pain! ARG! This is so frustrating!

Going to see my opthalmologist this afternoon, and will see what he says. Also, have my 2 month followup appointment for my stem cell study on Wednesday so will be getting an MRI and an entire workup.

Come on stem cells… you gotta be working somehow, right? I am thinking maybe this would be a lot worse if I hadn’t gotten you guys in my system.

About 2am now… will be receiving my last steroid IV tomorrow morning at 9:30. Had to skip Saturday and Sunday infusions because home health was not available – crashed hard over the weekend from my first 3 days of steroid withdrawal and now I resumed day 4 today and will have day 5 tomorrow.

Insomnia is in full swing and even after taking medications to help me sleep, I think I have maybe yawned once. However, I sit here with absolutely no initiative to get off the couch and get anything done – too tired and loopy but not sleepy – weird. I feel like I am in a dazed limbo.

I hope I might become myself again possibly by Thursday/Friday. Been trying to do things with my boys and having fun with them but it’s so tough with spasms, pain, brain fog, daytime fatigue, and a nightly lack of sleep. I have all these fantastic plans of cleaning my house, crockpotting, organizing closets, and taking my boys to fun places… but I am stuck right now.

Sleep is necessary… so I am going to lie down and pray that I can close my eyes and dream of wonderful things happening in the near future.