Delayed by a day because of that “leap day” in February, March is actually here now!

My little one, Al, is turning 5 in two days! We have plans for Saturday which include Monster Jam at Ford Field in Detroit. We have even have Pit Passes where the boys will get to meet up with the drivers and will get to be up close and personal with those ginormous trucks. They are so incredibly excited! I, of course, will be in charge of the Nikon camera and be taking so many pictures that I don’t think I will even be watching the show. My eyesight is still pretty yucky but this camera will be doing the work in “auto” mode this time around. Still have my fingers crossed that my eyes get better by then though.

And speaking of said “leap day”, T3 lost yet another tooth and is asking for the toothfairy to bring him something awesome since he lost two teeth in the last few days. I guess the days of a quarter under the pillow have long passed. (Dang, I didn’t get the camera out – note to self, will have to take a lovely toothy pic tomorrow to show off the awesomely cool smile he is sporting now) So, if anyone has any ideas for a 6 and a half year old (going on 13) to get from the toothfairy for losing two teeth, just let me know. Oh yeah, he wants everyone to know: “I didn’t even cry when they came out” and “I have lost two teeth now but I lost four teeth so far” and “I love you mom – you did a great job pulling them out”.

Thanks buddy, mama loves you too!

There comes a time when you lose sight of what makes your life special, interesting, amazing, and you just plug through day by day feeling down and low. I haven’t been blogging because my mom always said “if you have nothing good to say, don’t say anything at all”. This blog was meant to be about my children and has started to become a blog about my life with a bit of kid stuff thrown in. I am not sure if I should keep this blog as a “mommy blog” and start another one which chronicles my life with disability, or if I should just keep everything in here. I’ll sleep on it for now…

Now, for the literal meaning of this post.

I am losing my eyesight. Makes it tough to blog on the computer. My vision is blurry, pachy, and just messy all together. It’s difficult to see the computer screen most of the time and it takes me about twice as long to read what I type or what others type. I just got off of a 3 day IV solumedrol infusion and have not had any improvement in my eyesight yet. I had to stop the MS medication I was on, on February 19th, because it obviously wasn’t working. I had new activity on my MRI and my eyesight was getting worse. On top of that I was starting to have heart palpitations, which as a rare side-effect of this medication (Gilenya) can kill ya possibly. Not a very good situation at all.

But I want and need to tell my story because life has taken a turn for the better! So, I want to start blogging again, and I may just start a separate blog for myself or just keep everything here, who knows.

So, the good, amazing news! I have been accepted to the only U.S. Stem Cell study for M.S. This is big. This is huge! Here is a link to the study. I already got paperwork and will be scheduling removal of bone marrow sometime in end of May. This is such a wow moment for me. I am so incredibly excited and I hope to be able to be on the forefront of hopefully reversing and/or curing Multiple Sclerosis as a part of this research study.

And lets throw some kid-stuff in… Boys are doing great! Growing so fast! I need to get back into taking pictures of them and renew my Flickr account. I can’t believe Al is turning 5 this Saturday and T3 will be 7 in July! Time flies way too fast sometimes. I hope everyone else from my mommy bloggers and their families are doing well. I look forward to returning to the blogosphere and getting back into life.